Additional Resources

Partner Sites

http://www.lls.org/

The Leukemia & Lymphoma Society is the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients.

http://www.alexslemonade.org/

Alex’s Lemonade Stand Foundation for Childhood Cancer.  ALSF is a national childhood cancer foundation dedicated to raising funds for research into new treatments and cures for all children battling cancer.

Foundations

http://www.mds-foundation.org

The Myelodysplastic Syndromes Foundation, Inc.  The foundation was established by an international group of physicians and researchers to provide information relating to MDS.

http://epefoundation.org/

Edward P. Evans Foundation.  Foundation geared to understanding MDS, improving diagnostics, therapy and care for patients.

http://www.virginiarose.com/

The foundation works to help families fighting pediatric cancer, and to raise awareness in communities.

http://www.gabriellesangels.org

Gabrielle’s Angel Foundation for Cancer Research encourages the development of more effective therapies for patients with leukemia, lymphoma and related cancers.

http://www.jimmyv.org

The V Foundation is a charitable organization dedicated to saving lives by helping to find a cure for cancer. 

Research

https://www.ncbi.nlm.nih.gov/pubmed

PubMed comprises more than 26 million citations for biomedical literature from MEDLINE, life science journals, and online books.  It is a free resource from the National Center for Biotechnology Information (NCBI), at the U.S. National Library of Medicine (NLM), located at the National Institutes of Health (NIH).

Bone Marrow/Stem Cell Transplant

http://www.bmtinfonet.org

Blood and Marrow Transplant Information Network provides support for transplant patients and their families.

http://www.nbmtlink.org

The National Bone Marrow Transplant Link provides information and support services to patients and families RE: stem cell transplant challenges.

www.bethematch.org

Operated by the National Marrow Donor Program, http://www.marrow.org, this is the largest and most diverse marrow registry in the world.

Cancer

http://www.cancer.org

American Cancer Society is a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem.

Government Organizations

http://www.cancer.gov

The National Cancer Institute is the federal government’s principal agency for cancer research and training. 

Health Insurance

http://www.dol.gov/ebsa/faqs/faq_consumer_cobra.html

COBRA health insurance provides certain people with temporary continuation of health coverage at group rates.

http://www.medicaid.gov/index.html

Medicaid Health Insurance provides health care coverage for some people who cannot afford it.

Hematology

http://www.hematology.org/patients

The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood by promoting research, clinical care, education, training, and advocacy in hematology.  The Find a Hematologist feature helps to match patients with practicing hematologists in their area.

Rare Diseases

http://www.globalgenes.org

Global Genes is one of the leading rare disease patient advocacy organizations in the world, promoting the needs of the rare disease community.

http://www.rarediseases.info.nih.gov

The National Institutes of Health Office of Rare Diseases offers information about rare diseases, including links to support groups.

http://www.raredisease.org

National Organization for Rare Disorders (NORD) offers information and patient networking regarding rare diseases.

http://www.rarescience.org

Rare Science is a nonprofit research organization that focuses on identifying therapeutic solutions for kids with rare diseases.