Who We Are

The RUNX1 Research Program was created by The Babich Family Foundation, a foundation dedicated to advancing areas of research of particular importance to families affected by RUNX1 FPD/AML. 

The RUNX1 Research Program has partnered with two renowned cancer foundations to extend our organization’s reach and potential. We have partnered with the renowned childhood cancer foundation, Alex’s Lemonade Stand Foundation (ALSF), in order to raise awareness and accelerate research of RUNX1 FPD/AML. ALSF is committed to creating opportunities for new and innovative research into treatments and cures for childhood cancers. Additionally, we have partnered with the Leukemia & Lymphoma Society (LLS) to launch a competitive grant to advance the understanding and treatment therapies of familial RUNX1 mutations leading to leukemia.

Executive Director - Lee Grossman

Lee is a nationally known patient advocate, serving on numerous government committees and nonprofit boards.  Lee spent 11 years as President and CEO at the Autism Society of America (ASA).  He has served as Interim CEO of the International Dyslexia Association, and overseen international and national projects to improve patient care.  He was the CEO of the Association for Vascular Access where he led a transformational initiative to improve the practice for vascular access professionals, expanding its mission to become a patient safety organization.  Most recently, he served as President and CEO of Advance Enterprises, a global consulting firm in Washington, D.C.  He started his career by founding and then running his own medical consulting firm for over 20 years in Honolulu, Hawaii.  

“I am very proud to be working with the RUNX1 Research Program,” said Lee. “Tim and Monica have created a successful organization that has brought together the key opinion leaders and researchers in the field.  Their dedication and passion has moved RRP forward, and I am honored to join with them to find a cure for RUNX1 FPD/AML and to support this community.”

Lee attended college at the University of Pennsylvania in Philadelphia, completing his senior year at Hawaii Pacific University in Honolulu, Hawaii, and earning his Bachelor of Science in Business Administration.  He has a Masters in Leadership from Georgetown University McDonough School of Business, and is a Certified Association Executive (CAE).  We are confident that Lee will help us refine and develop RRP to allow us to achieve our mission and goals more quickly.  Lee’s extensive experience on both the inside and outside of patient-focused nonprofits underscores our commitment to the patient’s perspective.  Lee has the tools to help us build out our patient community in order to take the organization forward and better address the community’s needs.  You are welcome to reach out to him by email at: [email protected]