Join our patient community

Our community is growing every day.  Join the RUNX1 Research Program and others affected by RUNX1 FPD/AML on RareConnect.  Members can use this secure platform to ask questions and seek support.

Why We Chose RareConnect

Living with a rare disease can be an isolating experience.  RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.  RUNX1 FPD/AML is now part of the RareConnect family to provide connections and information about this disorder.

To join our community, click here.